Who is a Peyronie’s Disease Expert?

The problem of the Peyronies specialist

The problem for a man with Peyronie’s disease is much greater than his physical condition. If it were not bad enough that there is no known cause and no known cure for Peyronies disease and that most medical doctors prefer to rush out of the room rather than explain this problem, there is another layer of distress to deal with when you have PD.   It appears that even within the medical profession there is disagreement about who should provide Peyronie’s disease treatment. While reviewing an internet Peyronies forum recently I discovered an interesting Q/A.  This brief exchange demonstrates just how great the difficulty is for any man who has a curved penis to know where to go for help.  The doctor’s name has been omitted only because it is actually not important to this discussion. Suffice it to say that this doctor is considered a Peyronies specialist and practices in one of the largest US cities. His answer says a lot about the low knowledge and poor experience level of the average general practitioner and urologist with Peyronie’s disease.  It is both amazing and sad to think he believes so few doctors are capable of providing good care for this problem. I have been diagnosed with PD by a urologist 3 months ago. I am 59. He has prescribed 800 IU of Vitamin E daily & also Infam-away (a hi-potency Enzyme formula) capsules 6 daily on a empty stomach. Nothing has helped after taking these medicines for 3 months. Erections are very painful and curvature has developed to the left. An indentation about 1" below the glans has also developed. He has basically told me that there is nothing else he can do. My primary care physician admits that this is a disease that not much is known as to the whys and what will work to help the pain and hopefully stop or reverse the curvature which at present is 30-40%. I was given a pain killer to help especially if erections get too painful. Are there any over-the-counter or on the internet medicines that may help? Dr. XXXXX Answers: There are no known over-the-counter products of benefit in Peyronie's disease. Most urologists know little about this condition and are generally not completely up-to-date on treatments and we suggest that you seek out a Peyronie's disease expert for evaluation and a discussion of treatments From his response you could almost hear the professional rivalry and his impatience with his medical colleagues who he thinks do not know as much as he thinks he knows.  You will also notice he did not offer any helpful advice to this man who asked the question. If you should not go to a urologist for a problem with your penis, then to whom should you go for care?  If “most” urologists do now know enough about PD to be current with care, how is the average patient to know who is safe to go for care?  No urologist has on his/her business card, “I am a urologist but it do not know how to treat PD.” Many of the people who write to me at the PDI website info@peyronies-disease-help.com live in small states and areas of low population, with poor access to a urologist and have no idea who a “Peyronie’s specialist” might be.  This is why so many men who contact me after going through the medical route of Peyronies treatment are totally confused, frustrated and angry about their medical care. While I do not agree with the opinion of this Peyronie’s specialist, “[t]here are no known over-the-counter products of benefit in Peyronie's disease,” I can only assume he is referring to the absence of studies in medical journals about non-drug treatment of PD and not his own private investigation or experience.  This tends to be true in this country because our medical doctors are not comfortable or experienced doing independent thinking. They only repeat what the drug companies and the multi-million dollar drug research have told is the truth. This truth of course changes when that same multi-million dollar drug research is found to be false, full of bad research, or riddled with corrupt findings.  When a new “wonder drug” is suddenly pulled from the market after patients are made worse or die from the prescribed drugs they are given by doctors, the doctors are told to think and prescribe in a different way.  They are given new truths from the drug companies and new drugs. In Europe it is different.  This is why so many new ideas and innovative discoveries come from Europe. In my own opinion, it is best to attempt to promote your own spontaneous recovery from Peyronie’s disease by doing all that you can to increase your body’s ability to heal and repair the curved penis plagues you.  Read about this process at Start Peyronies treatment

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